Includes bibliographical references and index.

Print version record.

Many regulatory and professional agencies countenance the idea of patient-and family-centered care, yet lack an infrastructure able to support such care or employ health care professionals who lack the necessary education, experience, or skills. This book is a comprehensive guide to family-centered care for healthy, ill, or preterm newborns. It guides health care professionals in creating, supporting, and advancing a culture that values partnerships with families. The book is replete with practical suggestions, strategies for effectively communicating with families, and best practices for heal.

pt. I. Basic concepts of patient- and family-centered care. 1. Designing family-centered care : Partnering in family-centered newborn care ; System- and provider-centered approaches to health care ; Family-focused approach to health care ; Changing the organizational culture to support family-centered care -- 2. Creating the family-centered environment : Environmental considerations ; The language of partnership ; The "visitation" policy ; How families can improve systems of care ; Family advisors' role in enhancing the family-centered environment -- part II. Applying concepts in maternity care. 3. Supporting the mother and family with a high-risk pregnancy : Antenatal counseling of the high-risk mother ; Support of mothers during high-risk pregnancy hospitalization ; Preparation for possible NICU admission -- 4. The birth plan : Partnering with families through a birth plan ; Strategies for supporting and improving the birth plan ; When a birth plan must be abandoned -- 5. Supporting the infant, mother, and family in the birthing room and beyond : Keeping the family together in the birthing room ; Supporting partnerships in emergency situations ; Mother-baby care -- 6. Supporting the mother and family during admission, procedures, and resuscitation in the NICU : Welcoming parents during NICU admission ; Welcoming parents during procedures ; Welcoming parents during resuscitation.

pt. III. Applying concepts in the NICU environment. 7. Supporting the role of the mother and family in the NICU : Defining and supporting the family's role in the NICU ; Challenges to the family's role in care ; The nurses' role as coach ; Supporting nursing staff to empower the family in the baby's care -- 8. Welcoming parents during interdisciplinary rounds and nurse hand-offs : Challenges to welcoming parents during rounds or nurse hand-offs ; Benefits of family-centered rounds and hand-offs ; Parents as educators ; Staff education and support -- 9. Planning for the journey home : Physical examinations as a partnership opportunity ; Making the transition from the NICU to home ; From discharge planning to partnership in care ; Monthly care meetings -- 10. Family support : Virtual connections ; In-person connections -- part IV. Family-centered care during challenging situations. 11. Communicating with and supporting parents in palliative care, withdrawal of support, and bereavement : Antenatal planning for palliative care ; Strategies for communicating bad news to parents ; Supporting families during and after the baby's death -- Challenging situations : Parents who never come ; Parents who are "overinvolved" ; Angry parents ; Parents in denial ; Parents who overstimulate the baby ; Mothers with substance abuse -- 13. Resources and tools to advance patient- and family-centered care : Websites.

English.